Based on my experience, twenty-nine year old Deaf women should have twelve tattoos, read Paul Auster, and have a penchant for watching Buffy shows. Based on my experience, Deaf women my age should be spending their days and nights reading the latest (and the oldest) articles about what a sentence means in ASL. Based on my experience, Deaf women should consider themselves culturally Deaf but still cherish their participation in the hearing community because they just love musicals too much.
Obviously, I do not mean what I said in the first paragraph, I’m trying to show that the “based on my experience” logic does not work. I’ve had enough training - and experience, dare I say - to see that it does not. To take one person’s experience and say that it is representative of people who have similar characteristics does not work because there is always more difference than similarity.
This blog entry is a reaction to the latest article on cochlear implants in the health section of the New York Times. The article is written from the perspective of Josh Swiller, known for his recent novel on his Peace Corps experience in Zambia. It is an interesting article that explains how the cochlear implant works for Josh. He can now talk on the phone when he couldn’t before. Good for him.
But one comment struck me as a linguist-in-training (and as a twenty-nine year old Deaf woman who likes Paul Auster and Buffy), “Mr. Swiller says based on his experience, ‘a small child with severe hearing loss should be implanted as soon as possible. Sign language can be learned down the road, but not English. It’s a no-brainer to me if you want the child to succeed in a hearing world.’ ” This statement is heavy with false claims.
One of the claims is this: Because a cochlear implant ensures that a child will successfully hear, then it follows that the child will successfully acquire spoken English. What’s wrong with this claim? Cochlear implants do not have a high success rate (Johnson 2006). Cochlear implants are not a guaranteed method for access to and subsequent acquisition of spoken language. Robert E. Johnson says this so much better than I can. So if you can read the article, please do.
The other claim is that ASL can be learned down the road but that English cannot. Behind this kind of thinking is the assumption that English is a language that cannot be acquired later in life. It also then follows that it is assumed that ASL is not a language, but rather some kind of communication system that someone can be trained in later, like writing. The last fifty years has seen a crazy growth of sign language linguists demonstrating otherwise. ASL is a language and it is acquired - not learned - in exactly the same way that English is. Linguists do agree with Swiller that language must be acquired by a certain age. But what that first language is does not seem to matter. If a child has early access to any one language, then that child will be able to acquire other languages in life. That means that a Deaf child can acquire ASL first and then acquire English later in life.
Yet another claim, and the last I’ll bring up here, is that success in a hearing world requires that one use (hear and speak) spoken English fluently. Deaf people all over the world succeed in life using signed languages as their primary language. Or, to put in terms used in the article, based on my experience, I’m doing just fine, thank you.)
A “based on my experience” generalization (meaning that what happened to me should be true for others) causes considerable harm when published in a reputable newspaper. It creates an appearance of credibility and brings readers to perceive Josh Swiller as a spokesperson for people who are deaf or hard of hearing. It perpetuates the myths of ASL not being a language, of cochlear implants being 100% successful, of cochlear implants aiding the acquisition of a spoken language. All of these myths are harmful to the Deaf community which is comprised of different individuals who have successfully (or unsuccessfully) reached certain stages in language development, career development, et cetera, in different ways. While a cochlear implant may work for one individual, it will not work for another - or, more probably for most. We cannot endorse cochlear implants as a cure-all for deafness, because it isn’t.
Well, that’s based on something beyond just my personal experience.
Note: To be fair to Josh Swiller, let’s not forget how the media can distort the original message of interviewees. In this blog, I am not attacking Josh Swiller. On the contrary, I respect and support his decision in getting a cochlear implant. Instead I am addressing the claims that were implicit in the article.
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“It creates an appearance of credibility and brings readers to perceive Josh Swiller as a spokesperson for people who are deaf or hard of hearing. It perpetuates the myths of ASL not being a language…” - Julie Hochgesang in this DeafDC article.
versus
“Your advertisement perpetuates a common myth that all people who are deaf can only communicate using sign language and are, therefore, isolated from the rest of society.” - Karen Youdelman in the AGBell letter to Pepsi.
http://www.agbell.org/uploads/Pepsi3ltr.pdf
Compare and contrast? I see some similarities between the two on some levels.
Good point. One difference is that Swiller made strong, specific statements about deaf people, while the Pepsi commercial merely displayed signing deaf characters.
Pepsi was in a no-win position. Exhibit oral deaf people, it’d be perpetuating the myth that all deaf people can speak; exhibit signing deaf people, you-know-what. Swiller, on the other hand, was in a position to make nuanced statements.
I’m talking about Julie’s comment versus Youdelman’s. About the “perpetuating myth” part.
That’s apples and oranges. I cannot imagine that the public would conclude from a humorous commercial that all deaf people are like the guys in the Pepsi commercial.
On the other hand in a serious venue, such as the New York Times, it is easy to infer conclusions about a group from a prominent person within that group.
One is fiction. One is reality. That is the difference between Julie’s comment and Youdelman’s.
You want contrast? One is a humorous commercial and the other is an article in the health section of the New York Times. Kinda different. I kinda see your point though - but you gotta admit, it is not all black and white. It almost never is. (Read the research article linked to above.)
My biggest concern is deprivation. One shall not be deprived of learning through the strongest senses, nor shall one be deprived of learning speech and hearing skills if one is inclined to perform well in these areas. Is not it possible to benefit from both? MY experience, though, is I benefited from using the visual mode by signing, reading, and writing.
Oops, meant to reply to McConnell.
Based on your experience, you have a warped perception of reality because you cling to bilingualism and refuse to acknowledge that English, not ASL, is the coin of the realm in the United States. Moreover, Gallaudet University was founded as an institution of higher education, was it not?
you know almost all deafdc bloggers are bilingual? glad you enjoy our articles. :)
Hiya Julie and Mike…I found you guys! Thanks for the link.
Mike, your comment was thought-provoking and appropriate.
Julie, regarding the “based on my experience” generalization, I understand your point, but this article is not about convincing someone as to the effectiveness of cis, it’s about promoting awareness, so that an aunt of a friend of someone whose daughter was born deaf, can say, “Oh, I just read about a man who could talk on the phone even though he was deaf, he had some type of cholica implant.” Know what I mean? Who better than Josh Swiller to advocate for cis in young children, the man has experienced hearing aids, ASL and cis? All of us talk about our personal experiences and offer opinions, I must say that was quite a bold statement to make, I haven’t even said anything like that just because I know that the ci doesn’t work the same for all…there are a lot of factors involved - but I do and will continue blogging based on my “personal experience” to spread awareness.
I look forward to reading more of your blogs, and Sara Michelle Gellar is hot.
*smile*
Jodi
Jodi, thanks for coming here to read the blog. I appreciate your insights.
I just want to make one thing clear. I think the article’s interesting. I support Josh’s decision in getting the implant. My beef was only with that one statement - which was a pretty bold set of claims.
I think that using personal experience is important. It’s one step in understanding a certain phenomenon. But claims or generalizations cannot be made solely on personal experiences alone. Does that make sense?
And yes, Sarah is! :)
Hiya Julie,
Thanks for your reply…I think JS must feel pretty strongly about that to have made such a comment and I am sure he’s not the poster-boy type. *smile* Jodi
It could have been that he didn’t make that particular comment. Who knows? Point is, it was printed like that.
Anyway, how’s the purple dress? :)
Comments:
1.) Who is Robert Johnson? Never heard of him? Interesting link…will have to read it sometime.
2.) So, Buffy is pretty good? You are the second person to tell me so in a week…maybe I will have to start the Buffy series…hmmmm….
3.) For those who are gonna get on me about Buffy…c’mon gimme a break…the writer’s strike has killed my TV series viewing cycles…..I don’t have much choice…
Hey JJ!
1. Robert Johnson is a professor in the Gallaudet Linguistics Department. And all-around awesome writer/thinker.
2. Buffy rocks!
3. Who cares about them? Buffy rocks!
So, what’s Robert’s expertise with cochlear implants if he’s a Linguistics professor?
The thing about being a linguist in the sign language linguistics field for the last thirty years is that you become an expert in deaf-related research, because there isn’t that much. Johnson has written several articles related to sign language and deaf education, both of which require an extensive understanding of the different methods used to “rehabilitate” the deaf (hearing aids, speech therapy, educational sign systems, cochlear implants, etc.). For example, he was one of the authors of the highly influential and still widely read article, “Unlocking the Curriculum”, which has had profound effect on deaf education. Basically, Johnson has the expertise to find the research and make informed conclusions based on what is available in the research.
There still is not much research on the effect of cochlear implants on language acquisition, on educational achievement, on most anything really. It’s still too new. Such research will be necessary to help us understand the advantages and disadvantages of cochlear implants. But again, let me stress that I’m not against cochlear implants, but I am against relying on them for being the one answer to providing access to language and education for deaf people.
Hi Julie,
2 things:
1.) I don’t mean to rain on your parade here….but with CI’s being relatively new (when compared to hearing aids, the oral method, and etc..) are you sure that Johnson has some hard data on CI failure rates? (Now, I haven’t read the link you gave yet…I only glanced at it). I mean there’s a whole new generation of CI kids just entering the college level that were implanted as infants and exposed to AVT all of their lives…. Unsure….???
2.) OK, I will try Buffy!
Sorry, AVT?
He has some data yes. If you’d read the article, you’d see. But it’s not the whole story I don’t think. No one seems to have that yet. Audiologists are parading their success stories. ASL advocates are parading the failures. What about the rest? What does the average CI user look like? If there is even one…
It’s becoming narrow now :-)
AVT = Audio Verbal Therapy
AVT believes that CI children should MAXIMIZE all residual hearing that they have without the assistance of speech reading or sign language. Basically, as I understand it, it is a teacher talking with her mouth covered and practicing the kid to LISTEN and understand what is being said. AVT looks brutal to me..but only because I hated my speech therapy teachers while growing up :-).
I understand what you mean…there’s no SOLID data from either side…success stories on both sides…failure stories on both sides…I really think it simply comes down to parental involvement…or having good teachers that really care and set the bar high…
I totally agree. Parental involvement, good teachers, and a healthy income are good indicators for successful raising of deaf children no matter the method.
And those three factors (parental involvement, good teachers, good income) often compound the picture when trying to see what kind of method works. For instance, if we have a successful CI user (who is also lucky enough to experience all 3), supporters may be quick to claim that it is the CI responsible for such success. How can they tell? Same goes for ASL advocates.
As always, the story isn’t simple.
JJ, one point of clarification.
CI users do not have any residual hearing. It’s actually destroyed during the procedure. CI users have ‘recreated’ (100%, but the brain needs to adjust to be able to process it, and in some cases, they don’t) sound through the use of the microphone on the processor. It’s not residual by any means.
Not always, anon.
There are techniques being done to avoid damaging any residual hearing. And upon doing so many have found that with the preserved residual hearing for the most part along with cochlear implantation, the combined results showed that the electrical speechprocessing has substantially improved the speech perception abilities and hearing in noise. Music appreciation and quality of sound have also been maintained.
http://www.ohsu.edu/nod/docume.....0paper.pdf
And another link.
http://www.springerlink.com/co.....218767748/
McConnell.. whatever. All I know is that I have no hearing in my ear that has the implant.
I was just correcting JJ when he said: “AVT believes that CI children should MAXIMIZE all residual hearing that they have without the assistance of speech reading or sign language.”
CI users can do more than just maximize their ‘residual’ hearing.
I wish that the NYT acknowledged his oral upbringing and that would make the article appear more of individual experience.
Some hearing relatives and friends of mine would say they envy my deafness because of all the “boring” or “TMI” conversations going on around them. They assured me that I’m not missing anything, and I like to think that’s true. I’ve evasdropped on quite a bit of deaf conversations in few cities and after following their conversations, it’s either boring or TMI, too!
and yes, Buffy rocks! Let’s go Scooby gang..
Interesting because I am considering a CI, but I still have to go through the process of talking to doctors and finding out what the best solution for me is.
the article is somewhat distorted, but he did say based on his experience. How is he to know that whether the ci would’ve worked on him had his parents had him implanted at 2 years old.
I, for one, am glad my parents didn’t do that. i find it completely bizarre because several of my friends, including myself and my sister all speak very well. Often times, people don’t realize i’m deaf until I mention it because of the fact I speak just like them! with multiple mispronuncations, mind you.
but I am becoming much more aware of how much I miss out of conversations that go on around me, especially at work. And it has come to be more frustrating. i think mainly because I’m so used to working independently, this job I’m at, asks for us to colloborate a lot with one another. And that’s only 1 of my reasons for considering a ci.
& i especially loved buffy. Obsessed with it.
i dislike buffy. ;)
Here’s an interesting comment on the article that was posted to Josh’s blog (http://cochbla.blogspot.com/). I thought it might be worth sharing here:
==============
Hi Josh, I’m a frequent lurker and mom of a newly-speaking/hearing deaf 2 YO with a CI — LOVED your book (and your NPR interview).
And, I thought this article was pretty great, too — you conducted the interview BY PHONE?? Amazing.
But, there is one statement I disagree with a little bit — unless I misinterpreted it, which could very well be the case. It fell right after one I totally agree with:
“A small child with severe hearing loss should be implanted as soon as possible.”
Yes! That early window of time between 0-3, when children most effectively acquire language, is the right time to implant (if you choose to implant, which is not right for everybody, of course).
But you then say: “Sign language can be learned down the road, but not English. It’s a no-brainer to me if you want the child to succeed in a hearing world.”
It may be that you weren’t recommending a trade-off at all (English vs. ASL), and were just expressing the urgency involved in getting the implant. And it may also be that you are emphasizing the importance of acquiring a written language to succeed in the hearing world, which I agree with. But I’ve seen a bit of discussion of that statement that seems to indicate to people that you are taking a position against acquiring ASL early. And it’s with that interpretation that I disagree.
My input, based on the bilingual method (English AND ASL, though not simultaneously) we’re using very successfully with our little ciborg is that the window doesn’t have to be exclusively devoted to just one language and closed to others for effective acquisition of a primary spoken language.
That critical point, before the brain loses all that wonderful toddler plasticity that allows it to really and amazingly rewire itself to the CI and the brand new task of hearing is also the right time to build ASL AND English or French or Mandarin or however many spoken languages a child has the capacity to take in (whether hearing, oral deaf, deaf with HAs, deaf with CIs, whatever the case may be).
And, while a nice-to-have language for everyone, for a profoundly and pre-lingually deaf child with a CI, ASL is a wonderful first or second language to use whenever that processor is off for the bath, for swimming, or for bed-time, or when with peers, teachers, or family members who are deaf without CIs. Or if, let’s say, she is tramping through Africa, someday, and her processor is stolen :) . OK, I suppose few people will happen to know American Sign Language vs. a local sign language, but let’s say she’s tramping through the wilds of Martha’s Vineyard over Christmas-time, loses her backpack, and Cochlear Americas and FedEx experience holiday lag and can’t get her that new processor for 2-3 weeks when she’s back home at a stable mailstop. How great will it be to have a fluency in a language that has some significant local currency and doesn’t require that amazing, but vulnerable tool so she doesn’t feel that sense of loss and helplessness you encountered when your hearing was suddenly GONE?
Although when the time comes, and she loses that backpack, boy will she be in big trouble at home!
Chris, thank you for sharing.
http://cochbla.blogspot.com/20.....times.html