You have five senses. You can smell. You can touch. You can taste. You can see. You can hear. Take one away. Which could you deal without having?
If you took away the sense of smell, well, you wouldn’t be able to appreciate how things smell, and sometimes it’s known that the sense of smell affects the way things taste. Hey, at least you wouldn’t have to smell any bad body odor when you’re stuck on a crowded train. But, what about your own body odor. I shudder to think.
If you took away the sense of touch, you wouldn’t be able to feel pain. It can be destructive, especially when you’re a little kid. You wouldn’t be able to tell if something is broken or if something hurts, internally. At least you could go through surgery and not have to feel any sort of pain. Wouldn’t that be a great thing? Perhaps not…
You can take away the sense of taste, but then everything would taste, errr…there would be no taste. What’s the point of eating something sweet, something salty? You wouldn’t crave something.
Take away my sight, I wouldn’t be able to embrace the beauty of nature. I wouldn’t be able to drive, but I’d see the world in a whole ‘nother way.
You already took away my hearing. I can do anything but hear. I can still communicate…I can still get around, I can’t quite understand music.
Now comes the question that everyone’s been asked:
Would you rather be deaf or blind?
(One of the blogs I read on a regular basis brought this subject up, and she noticed that a majority of hearing people would rather be blind than deaf.)
I have Usher’s Syndrome and only found out about it six years ago. So, imagine my response when the doctor said, “You’ll be blind in 10 to 15 years.” I was blown away. I felt like my world just came apart. I’ll be blind and deaf? (I know you can’t really gauge how quickly someone will go blind just based on what you see, but I do see a doctor on a yearly basis to monitor my vision, and thankfully, it’s been stable for the past six years).
The prospect of being blind terrifies me. So when I hear a hearing person say, oh I rather be blind than deaf. I’m surprised, but then again, I’m not. I know they may perceive deafness as not being able to listen to music, understanding general conversation or even being able to speak for oneself. I do get it. Music is a huge part of my life. I listen to it every day, and I go to shows on a regular basis. I find music as an escape to another world. Music is part of every day culture. So to lose your hearing, and not to be able to listen to something so beautiful on a regular basis, that is scary to so many people.
If I am blind, I can’t look at beautiful photographs. I can’t drive myself, I can’t, I can’t, I can’t. I feel like I would be limited in so many ways, but then again I don’t know about all the technology that’s out there. I’m scared of finding out what kind of technology lies out there because then I would feel like I’m giving in to Usher’s Syndrome. I don’t perceive it as a syndrome, I sort of see it as a disease, as if it’s something they can fix some day (Trust me, I wasn’t this optimistic five years ago).
If you had to choose one or the other, and your life revolves around the things that make you rely on your vision more than anything, you’d probably choose to be deaf. If your life revolved around things that you hear, you’d probably choose to be blind. It’s not a perfect world. There’s no right or wrong answer to this question. It’s a matter of how you live your life, it’s how you want to live it, minus one sense.
I’d rather be deaf any day.
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I think that’s a question that is too easy for us here to answer. Deaf. Of course.
But what I’d like to know is what hearing people choose, and why. Now, that I find interesting.
I’d rather be blind, because it’s more valuable to be able to communicate in a dominantly verbal and as some would say “Audistic” society. As a CI user, I’m slowly starting to be able to notice the rewarding benefits of the complex hearing world.
I think the commenter above brings up a good point: It’s hard to say which of any of those senses you would choose, because you’re already deaf. If you weren’t deaf, would your answer be the same?
Personally, I’d rather be able to hear than be able to smell. My sense of smell is not a necessity, it’s just an added bonus. I like the smell of brownies, but I can do without. I don’t like the smell of the metro, drunks, dirty diapers or cigarette smoke. While there are also things I don’t enjoy hearing (crying babies, sirens, construction workers), I’d much rather be able to ask where the bathroom is* in a subway station than be able to smell coffee brewing.
* I’m not saying deaf people are incapable of asking where a bathroom is. However, if said person does not or cannot talk, he/she typically resorts to using paper or typing on a sidekick, whereas a hearing person can engage in a quick and (ideally) confusion-free verbal exchange.
Ah, this is a beautiful example of how we often take our senses for granted. Maybe you’ll feel differently when you meet someone who wishes she had the ability to smell when she was alone in a burning building. I’m not saying that being able to smell is more or less important than being able to see or hear, but it is a necessity for some people.
I remember reading somewhere in a book saying “Blindness cuts you away from things and Deafness cuts you away from people…”
there is a point there…
Helen Keller said that.
From Helen Keller’s perspective, who doesn’t hear or see as well as not being part of the vibrant Deaf community, I can see why she said, “Deafness cuts you away from people.”
In addition, there’s an issue about how deaf-blind people are being excluded by the Deaf community, which is unfortunate. If these very same deaf-blind uses this, “Deafness cuts you off from people,” I wouldn’t blame them. And worse, it’s by their own people who are deaf.
I had the pleasure of knowing my brother’s boss, who is deaf-blind himself. I sign in my natural fast-paced ASL via tactile with his hand on one of my hands and he understood everything I said. He is very educated and travels the world to give presentations to both deaf and hearing communities, mostly on the latter, I believe. I have learned so much from him and also others, especially when it comes to how the Deaf community don’t make effort to include Deaf-Blind, let alone interact with them.
I was just reading a blog on WordPress that was discussing this very topic - http://bountifulhealing.wordpress.com
She has a nice perspective on the senses and which one is important to her…
Wow. That’s a beautiful blog entry by her!
If I had them all…I would choose to lose the sense of smell..followed by taste….then hearing….then feel…then sight…I believe.
It is amazing to me that hearing people prefer blindness over deafness…its just mind blogging to me….don’t they realize that without sight…you couldn’t drive a car, watch football, see a movie, and so on…
I know nothing about music, but am aware of how much it means to a lot of people…but still its amazing to me that people don’t think of what blind people miss out on compared to deaf people……
I agree. Seems to me blind people have much less overall independence than deaf people do. But that’s probably a subjective judgment. Deaf people use a variety of alternative communication strategies and devices to interact with hearing people: lipreading, residual hearing, writing, mime, electronic technology, interpreters, etc. It’s doable. On the other hand, do most blind people need some kind of attendant care to function in activities of daily living, especially if blind from birth? Ya know, I pretty darn ignorant asking this question! No wonder hearing people ask the same kind of questions about deaf people.
I admire your optimism.
I would like to take the moment to dispel this myth that has been going on since I was born! :) I never had any sense of smell. The only thing I’ll notice something strong, which I doubt is part of smell, is if I put my nose inside the ammonia container. My gawd you say, I bet.
I often get asked the minute they learn I can’t smell, “Can you taste?” I get tired of having to answer this for years: “Yes, I do.” The same response I get is, “But, how if you can’t smell??” I think those who have no idea about lack of smell just assumes that it means one’ll lose a sense of taste. So, I have two jobs educating hearing people and those with sense of smell — or what do you call them? :)
Now onto taste, I can taste but probably not with the kind of sensitivity on the taste buds that others with sense of smell have. Not sure if taste buds and smell are connected.
Anyone want to be my smell interpreter? ;-)
“those with sense of smell — or what do you call them?”
Smellies? oh wait, I’m in that group too……
I would put some Vicks ointment on below my nose when I have to work with people who haven’t had their baths for days.
Katherine- I don’t have a sense of smell either (except if I get a whiff from nail polish remover, but no one wants to do that.). And I get asked the same questions as you do. I also have to elbaorate that I “REALLY” can’t smell, not just “oh I have a stuffed nose” ;-)
Back to the original poster, Erin- very lovely entry, well done.
I’m also in this group– hard of smelling. ;) I can smell very strong odors, or distinctive smells, but I have trouble with smell in general. I agree with JJ Puorro– this is the one sense I think I could definitely learn to live without.
I agree– great post, Erin. :)
This has always been in my mind about 5 senses. I’m sure that whoever invented them have all 5 senses to begin with. I’m curious if anyone has information on how those senses — smell, touch, hear, see and taste — were first introduced.
Erin, this is the best blog you’ve ever written. Your natural voice comes out when you write from the heart. I also think you’re one brave woman to face up to what’s happening and still have the courage to get out of bed in the morning. In a sense, that is what life is all about. You fall down, you better get right back up. Perhaps you know about Plato’s “Cave” allegory? If not, I’ll offer my interpretation of it: you can’t know what it’s like to taste freedom until you’ve been downtrodden and/or experienced rock bottom. No disrespect intended here but that kind of freedom isn’t free, know what I mean? But we have a lot to learn from brave people like you. That which does not kill you only makes you stronger, so said the crazy syphillic dude who talked to horses. There’s entirely too much hubris in the Deaf community. A lot of people should ask themselves “Do I really have genuine struggles or am I just along for the ride?” It’s hard to take claims of audism seriously from someone who say, lets say owns 8 acres in Bethesda and takes home a 6 figure salary and has vacation homes in Nags Head and Ocean City and constantly travels. For that kind of person to claim audism, cheapens the word and makes the rest of us with genuine struggles look foolish. I would be more inclined to take your claims seriously, so that’s my argument. Kind of foolish to play the paternalism card when you’re playing the Deaf card at the same time, isn’t it? (just to make it clear, I’m not saying you do that)
Hubris was a crime in ancient Greece, what a shame we got away from that, eh? On the other hand, the ancient Greeks were also big on pederasty, so I guess you have to take the good with the bad! From a male point of view, at least. I’ve been deaf half my life and hearing half my life and I can honestly tell you the grass is not greener. Life is tough for everyone, obviously there are certain exceptions if you’re wealthy enough to buy your way out of anything, but you can’t take the money with you in the end so it all balances out. Hearing people say that they would rather be blind than deaf because the thought of being deaf terrifies them. A persons voice contains information: You can tell where they are from, if they are educated, how intelligent they are. George Clooney is from Kentucky but lost the accent, for example. Meryl Streep can adopt any accent there is in hours. You might say a persons soul is in their voice. This is why you will rarely find a top-flight interpreter with a hee-haw redneck accent. If you don’t have that information from the world anymore, you would feel helpless. Nobody in their right mind would choose blindness over deafness, but nobody would admit it either. I humbly submit to you to write more blogs about your experiences and genuine struggles as we all go on this crazy journey called life.
Yes this is probably the ONLY blog entry from Erin I’ve come to enjoy reading.
However, I’m also reluctant to agree with the fact that being deaf is more valuable than being blind. But then again, both sides have valid arguments, it’s like trying to decide between having money or power. Money begets power and power begets money…. either way it works out. But as a person who covets hearing and bonding with people, I’d much rather be able to communicate (hear) them than see them. =)
Kudo’s Erin.
I think this question is probably one of the most popular that deaf and blind people encounter or consider throughout their life. I tend to agree with the majority of deaf people, definitely deafness over blindness. However, it would be fascinating to me to read the opinion of a blind person in response to this question. I want to know if there too is a tendency to lean toward their own disability, that is, an inherent bias. There almost has to be.
On another note, I want to say well done in handling the news of Usher’s Syndrome. Being blind is one of my greatest fears, since I’m deaf. I hope I’m not being crass in mentioning that.
Interestingly, I have asked this question to hearing audiences during my “Deaf Culture” presentations a number of times over the years, and the majority have tended to say deaf. Those who did say blind generally did so because of their interest in music…rather than because of their consideration of communication issues, language development, or whatever.
I think part of the problem is that it is hard for many hearing people to really conceive of what it means to not be able to hear. You can blindfold them and they immediately get a sense of what not being able to see means, and that scares the crap out of most of them. On the other hand, they conceive of deafness as just being this nice quiet solitude where you don’t have to deal with all the noise around you.
But then when I remind them what being deaf really entails - not being able to hear on a cell phone or listen to the radio in your car or understand group conversations at the local bar…then it really starts to dawn on them that there is a lot more to all of this than just the absence of sound. That doesn’t mean they necessarily change their minds, but they do start to appreciate what being able to hear is really all about.
Interestingly enough, tho…I did a presentation once where there were a few blind individuals in the audience and they came up to me afterwards and told me they didn’t like my asking that kind of question and found it somewhat offensive. Their point being that it was like comparing apples and oranges…how can you really say that one disability is “better than” or easier to deal with than another?
Some people deal with losing their hearing quite proactively - perhaps even going so far as to learn sign language, use devices and services such as interpreters and relay and flashing light signalers and pagers, and joining the Deaf Community; while others go through denial and mourn their loss, while researching surgical technologies such as CIs and struggling to get by with rudimentory lipreading skills and what little residual hearing they may still have. I suspect the same thing can be said for those who lose their sight - some will immediately begin learning mobility techniques, begin studying braille, investigate getting a seeing-eye dog and so forth…while others will go through that grieving and struggle to maintain what “normalcy” they can with what limited vision they might still have.
Failing that, both groups likely withdraw into isolation - fighting deep depression, suicidal thoughts, and increasing distancing from the world around them…be it things or people.
It’s a hard call. I don’t think any of us knows how we would deal with losing one of our senses until we are put into a situation where we are forced to confront such - any more than we know how we’d deal with a diagnosis of cancer or multiple sclerosis or alzheimer’s.
Kudos to Erin for a thought-provoking blog, and congrats on getting mentioned in the Post Express!
Can you provide the link of Erin mentioned in Post Express website?
check this link for more info:
http://www.deafdc.com/blog/?p=753
Well, I prefer to be deaf than blind. Why? Yes I am deaf, true, I also can hear as well. I do enjoy musics and so on but I also often wondered if it is better to be blind or deaf.
I watched a TV show called “ER” where two doctors (Noah Wyle and Anthony Edwards) were bored and talked back and forth while shooting basketball and they were asked series of questions back and forth Red or Yellow…one would say Red then one would ask Blind or Deaf…Noah Wyle’s character said “DEAF”.
I thought a lot after that scene because I have to agree deaf, because thanks to sign language and technology we are no longer “cut away from people”. Not only sound is beautiful sometimes but visually we can see snow, see flowers bloom, watch the sunrise and sunset, see the beauty of a baby’s birth, and so on. Hearing a baby’s birth is a lot of “groanings and yellings”. No offense to blind people but they prefer to be blind than deaf, which I can understand because they became accustomed to music, people’s voices, and so on.
I think Deaf is also an advantage: we sleep so damn good at night and not be awaken by garbage trucks!
I remember few years ago my former co-worker told me this: before she met me, she would have preferred blind over deaf, but after getting to know me, she said she realized being deaf would be more independent than being blind.
I don’t see how NOT being able to listen to music is a big deal to hearing people. It is just a bonus to me. We can make up communication via pagers, e-mails, laptop writing, etc. Can blind people make up for the their lack of “sight”? No, they can’t. What do they really enjoy? Just music and communication?? To me, that doesn’t seem enough. How about the movies, sight-seeing, seeing babies grow up, looking at paintings, etc.?? Yes, I know some blind people can use computer but there is so much limits. It depends on certain websites that blind people have access to. My co worker is blind but hearing. I asked her this question about computer. She said something that hers is voice-activated. But is that enough to look at websites: pictures, etc?
rose- I do see how listening to music is a HUGE deal to a lot of people. It’s culture. It’s a creation of something beautiful. It’s a mixture of all kinds of sounds making something you can appreciate. I have a friend who’s always listening to music. He might not have the radio on, but he has it in his head at all times, he’ll be making beats in his head. Music is a HUGE part of the world, whether or not you realize it.
If you think about it– it’s what brings people together. In churches. In a time of need. In a time of celebration. In a time of rejoice. It’s essential, in a way. Whenever there’s a tragedy—music is used to bring people together to help raise money. I can see how people would rather choose being blind over being deaf.